Ghost stories and shadows
I am nervous about typing this in case it tempts fate, but mum has had a few good days.
Even on good days, there will be moments when I am reminded that all is not well. Just as I am relaxed around her, something will happen or be said that makes me sit up.
Today, she talked about my aunt, who had had a flat next to hers in the 1960's. It was part of an old terrace townhouse, Victorian, or earlier. They both tell a tale of how it was haunted, how they would hear footsteps in the empty flat above, and how, after they had scattered flour over the floor up there, they went back and found two sets of footprints leading out of a cupboard and into the opposite wall. Side by side, an adult's and a child's.
"Oh yes, " I said, joining in the telling, "and now it's a hotel, isn't it? I know it. Near Star Hill. In Rochester. That's right." She has told me this bit herself many times, but today she remarks,
"Is it? A hotel? Well I never!"
We sipped our tea, sitting outside a little cafe, people watching.
Then she asked -and this was the moment-
"But.... if it's a hotel now, where does Pat live?"
Neither of them have lived there since the early 1960s, but in that moment, mum lost 50 years.
I've been given a name for it now, this thing. It's vascular dementia. I've found an online forum full of people going through it either themselves, or caring for someone who is. I haven't browsed it very much, it's too upsetting for now as everyone seems to be in advanced stages. It's like looking into our future and it's so scary. She will go downhill in large steps, in sudden deteriorations. I lie awake worrying and crying about when? and how much deterioration comes next? and how long do we have? how long before she's just a ghost of my mum?
I posted a question about whether I should tell her what it is. The "D" word.
As I had suspected, they advised not to, not if it would cause more upset.
So for mum it is "memory problems", a side effect of the TIA and the resulting epilepsy.
After all, the time I saw her crying over this was the time she asked me, "I'm not losing my mind, am I? I'm not, am I?"
No mum, don't worry. You'll be fine. You'll be fine. I'm determined that she'll think she's fine.

