Mum home.... but little thanks to the doctors!!!

I was able to bring mum home on Monday night. Sorry for the lack of update but it's all been so busy...

I had a call on Monday morning from a nurse who said,
"The doctor has been round, and says that you can take your mum home today! He says that the confusion was probably all just the urinary tract infection, and that's clear now, so she can go."
-WHAT????????

I had to bite my tongue, and just about managed to speak without shouting and snapping someone's head off! "Confusion"?????

She put me through to the doctor's assistant.

I explained that mum had NOT been admitted with "confusion" but with
(1)a droop to one side of her face,
(2)fluent aphasia, babbling, using all the wrong words, slurring,
(3)weakness in her right arm,
(4)inability to recognise anyone known to her, plus the fact that
(5)it seems she had been unconscious for 24 hours....
the paramedics, everyone in A & E and the doctor who saw her in the assessment ward ALL thought it was a TIA ("mini stroke"). The assistant I spoke to now said that she had had no idea of any of this, and that no notes of any of it were there!!!!! So none of the paperwork from the previous departments had been passed on! All they had recorded for her was what symptoms she had presented when she came to *that* ward- 3 days after it had all happened. By this time, confusion was probably the only symptom left, and the only one written down anywhere.

I stressed that everyone had suggested a TIA and then I was told that it was ok, the brain scan had been clear. So I asked them to carry out an ultra-sound on her carotid arteries (on the NHS's own website under strokes and TIA info, they list 4 tests for the condition- brain scan, various blood tests, an ECG and ultra-sound of the heart and/or carotid arteries- they hadn't done this last one...). They said that they would speak to the doctor and, if he thought it necessary(!!!!!!!!!), they would do one. But I could still come to collect her that afternoon

Well, I arrived at 3.15 and she was just being taken for the ultrasound scan! And on her discharge papers it now lists all her symptoms and says "Very Probably TIA". At last! They have it on her records!!!

The ultrasound didn't show any further clots but she has a follow-up appointment in 6 -8 weeks.

The doctor that had wanted to say it was all a urinary tract infection was hanging around but wouldn't talk to me. Grrrrrrrrr............. and if I hadn't intervened she would have been sent home with no clot-prevention medicine. I've read that after a mini-stroke there is a huge risk of having another one in one month, and a full-blown stroke in one year, UNLESS preventative medicine is given. I can't believe how close she came to having the whole thing dismissed as a urine infection! A mini-stroke is meant to be a warning, yet it almost got written off.

I asked if they had actually tested a "sample" that day to see the the infection had gone- answer was no. Had they actually done a sample when she came in to hospital? No. So how did they determine that she ever had an infection? Well, they bear that in mind because confusion can be caused by that. Okkaayyyy.... so the doctor put the symptoms of a TIA down to a urine infection that he had no proof of, then released her when he assumed it had gone, though he had no proof of that either. "Yes, well she's been on anti-biotics for it." ?????????!!!!!!!!!!!!!!!!!!

I feel a letter coming on.

-Especially as I have recently realised something else, far worse!

-They did the brain scan on Friday but didn't check it till Monday (because the doctors don't do rounds on weekends!) -and yet they started her on daily blood-clot prevention injections on Friday. -Not because of a suspected TIA, but because they didn't have time to see that patients were kept mobile. All the patients on that ward got it, to prevent thrombosis while being in bed for days. But this means that if the TIA had been caused by a bleed on the brain, they would have made it worse, as the injections worked by 'thinning' the blood- she would have bled even more.

All this at a time when the hospital was working to normal capacity- no rush on for flu outbreaks or anything like that. My God!!!

Anyway.............. I've tried to shield her from these details of course!

I'm relieved she is back home. But she is so down. She says she is angry at herself for getting ill, and annoyed and upset with herself. She is so quiet. Not chatting as usual. I'm more worried about this than anything else, now. I know she is tired, of course, and maybe in a few more days she'll be feeling a little more "up". But it is very disturbing to see her just sitting and looking into space. Early days, I guess.

Asthma

A visit to the astha nurse, once you're over the age of 10, always makes you feel like you're too tall.

Everyone seems to think that asthma is one of the "childhood diseases" that people either get and grow out of, or manage to miss. We had a charity envelope for an asthma charity through the letterbox the other week. You know- one of those you fill with brown coins from down the side of the sofa and then present to the collector at the door whilst trying to make a "honest, I put a pound in" look on your face, whatever that might be. Well, on the front of the envelope was a photo of a particularly peuse looking child, complete with gooey lips and snotty nose. I don't recall having either during an attack myself, but they seem to be compulsory for illustrating illness, especially when the artist is working in black and white.

The thing is, it isn't an illness that only affects children. I didn't have it till I was 23. I've only had one bad attack, and by bad, I mean a stay in hospital. This was December 1996. I lived alone then, and there was no phone in the flat. I had a bad cold, a bad chest infection on top, and had run out of my inhalers. I lived a long way from the doctor's surgery and had no cash for a taxi. Oh, and I had 4 cats. All these little things meant that the bigger things, like chest pain, and wheezing, grew worse.

I remember wrapping a blanket round me and walking to the public phone box. I called for an ambulance, then sat on a wall nearby and just waited. I think it took about 15 minutes. I then spent 4 days in hospital surrounded by victims of the worst flu outbreak this country had seen in years.

The wards were so full, extra beds made out of trolleys were squeezed in between existing patients: privacy was lost, as curtains could no longer be drawn round each bed. The wards were filthy and stank of stale urine. It took them 48 hours to get round to putting me on antibiotics, and by that time it meant having a drip.

After spending my first night in a nightmarish mixed ward- a senile woman on my right, waving soiled underwear around, a senile man farther down the ward trying to get into the wrong bed over and over, an intolerant yob somewhere in between who spent the dark hours shouting abuse at anyone: nurses, doctors, me, shadows.... I was moved to a geriatric ward in the morning as this was the only one with a space.

Because of staff shortages, I was given a chart that measured my breathing and shown how to fill it in. I was also told to note my pulse at the same time. There was a column for blood pressure, but was told not to worry about that one.

When I had originally reached hospital, samples of my blood was taken. These were lost, so a doctor came along for more. "I don't believe this is a chest infection," he said, "I think you have a blood clot on your lung, and it's very, very dangerous." He said he had to take blood from a different place to be sure, and then extracted some, extremely painfully, from my wrist. He left the bloody needle tip on the bedside table. It was still there the next day. I never saw or heard of him again.

Another doctor came the following evening on his rounds. The nurses presented him with "my" x-rays, which turned out to be those of an 85 year old woman. He eventually dismissed mine, as they were now 48 hours old.

The food was tasteless and cold, but at least I ate it. Plates were left on trolleys next to the beds of old ladies I had never seen move. After no staff had been around to help them eat, these were wheeled away when cold, untouched, leaving the patients to grow more skeletal.

One morning, when someone asked for tea, the steward couldn't find a cup on the tea trolley. They hadn't loaded enough. Spotting one on my bedside table, she asked if I had finished with it -which I had- then shook drips out of it into a bucket, filled it with tea, and gave to the other patient. I had been sipping water from that cup all night.

After 4 days I asked to be discharged. By this time I had caught another infection on top of the one I had arrived with: one that gifted me with diarrhoea and vomiting. The head nurse told me I would "be better off at home with that, if you stay here you'll get worse" so off I went, antibiotics and inhalers in bag.

Once home, I started to get better. The next day I called my employer to ask if they wanted me back on Monday, 23rd December, or should I leave it till after the holiday now?

They had given my job to someone else in my absence.

So you see, asthma isn't just a wheezy kid at the back of the class trying to get out of PE. I did put some money in that envelope the other week, but added a note, it isn't just kids, you know.